After everything that happened yesterday, I needed to find answers. I was in no condition to work but tried anyways. I made through a little over two and a half hours of my shift before I couldn't hide my grief anymore. I was emotionally drained and physically exhausted. I left work and I headed straight to the VA and asked to speak to the Patient Advocate. I was ushered into his office and he asked me how I was doing and what he could do for me.
I told him about the past month and the way that I had been treated and that I was very upset with the manner in which I had been informed of Doctor Casagrande's passing. He responded without remorse that he and upper level administration had decided the best way to handle this 'situation' was to not allow non-clinical personnel to say anything and to keep mum until the vets came in for their next scheduled appointments. At that time another doc would be waiting to (sarcasm here) 'blindside' an unsuspecting veteran with this horrible news. I was stunned. I told the advocate that I don't have scheduled sessions with Doc Casagrande and that I was only in his group CPT session. The advocate responded, "So many people come and go through the groups that we didn't bother." Again - stunned. I told the advocate it would have been easy to see, if he would have bothered to look at the rosters that I had been at EVERY session for the last six to nine months. Remorseless, he deflected my comment with something along the lines of what's done is done and 'gee, we're so sorry you found out this way.' I followed up by telling him that no one offered me grief counseling, nothing. He very quickly offered, :"would you like to talk to someone now?"
It was at this point that I realized that the administrators had no flipping clue how to handle these situations. This advocate, along with administration higher up, put hundreds of behavioral health patients at risk with their approach to dealing with the doc's passing. I wondered if the disconnect flowed into the care side, so I said I would like to talk to someone. I was introduced to a clinician (I don't remember if she was a doc or a nurse or a social worker) and talked about how messed up I was from all of this and it became very evident to me that she was distressed at how distressed I was. She told me that every veteran that she had seen in connection to Doc Casagrande's death had reacted EXACTLY the same way I have. She also mentioned (although I don't think she really meant to) that there were still veterans that didn't know because they hadn't been in for their scheduled appointments yet. She told me, "I know, after everything that's happened that you have no reason to trust us, but would you at least talk to one of the docs tomorrow who is taking over Doc Casagrande's patients?"
I could sense her frustration with the whole situation. This was an utter mess and Doc's co-workers were just as caught in this storm as I was. I said I would meet with someone tomorrow and I scheduled my time to meet.
After I left and was on my way home, I thought about the whole situation and it made me incredibly disgusted. That patient advocate was to advocate for what was best for the patients. Either one of two things explain his decision: He was lazy and didn't want to put in the extra work and due diligence to make sure every one of the doc's patients was informed as quickly as possible OR he was put in the position to make this decision without any knowledge of what WAS best for us. The VA needs to understand how much danger they put the veterans in. If I was any less stable than I am, I would have done things I would have regretted (become a danger to others) or done something I would never be able to regret (committed suicide). Every veteran should have been afforded an equal opportunity to grieve and should have been told in enough time to attend the memorial services. The way they decided to handle this situation was reprehensible and inhumane.
So, I stand by what I said yesterday in my post. The VA needs radical change. And it needs it now. No longer can we continue to put our nation's heroes at risk due to the ineptitude or apathy of bureaucrats. I will fight from now until my last breath to make sure this change happens. Come hell or high water. I have had people tell me the system is too big to change. I respond with this. Bullshit. When the people you are designed to serve are forced to go elsewhere to ensure they receive quality care and compassion, you have failed to meet the most basic of requirements for your continued existence. I will not bear the legacy costs of a broken VA when those legacy costs are paid for with the blood of my fellow veterans who have lost hope and take their own lives. The time for change is now. Let's be heard, folks. Don't stand silent and condone this with your inaction. Fight for the change we all deserve.
I try to keep the tears from hitting the keyboard as I write this. I found out today that I lost a man who held a special significance in my life. In his honor, I want to share what I knew of the man.
Read His Obituary Here: Dr. Joseph Casagrande
I never even knew his first name. We just always called him 'doc'. I didn't even know him for very long, but Doc Casagrande had a huge impact on my life. About a year ago, when I was out on short-term disability and learning how to cope with my PTSD, I found out about his Cognitive Processing Therapy (CPT) Group and asked to join it. That's when I first met him. We met one on on and he asked me pointedly whether I was committed to learning the tools I needed to learn to better my life.
That should have been the first clue that this doc was different. I went to my first group session two weeks later...and my life was changed forever.
Over the course of the past year, I have taken control of my life. I still have horrible nightmares, I still get triggered. I still have to fight the depression, the anxiety. The difference is that I have acquired, through emotional growth and a considerable amount of emotional pain, how to better cope with these symptoms of PTSD. I learned these skills in my CPT group and at the direction of Doc Casagrande.
He was an amazing man. He never wore his heart on his sleeve but his passion for helping veterans came through in his straightforward attitude and brutal honesty. He told us what we needed to hear, no matter how difficult. This was his gift to us, he taught us to look at our behaviors and beliefs unflinchingly, to never back away from a problem. Doc always knew what we needed to hear and talk about the most and directed group discussion. He didn't drone on and monopolize group time. He asked pointed questions and, throught his direction and the support of the other veterans in the group, each of us learned more about ourselves and what we could do to make changes for the better.
Four weeks ago, Doc wasn't at group. Neither was anyone else. When I asked where everyone was, I was told that Doc was out sick. Concerned, I let it ride. Two Wednesdays ago, someone else was leading the group, a clinical social worker (for more about this group session, click here.) By this time, Doc Casagrande had already passed away. No one said anything. When I asked about Doc, the social worker evaded the questions with 'I don't knows'. Growing more and more concerned, I went to group today and noticed that the room was empty again. I didn't wait around. I left and drove around for a little, thinking. In the end, I came back just after the group was ending and I ran into another doc that I have worked with and asked him for a no-bull explanation as to what was going on. The doc stared at me, stunned. The look in his eyes told me everything I needed to know but the doc said. He passed away. I found out that Doc Casagrande had passed before the last group session that I had been to and I felt the lights grow dim. My world took on a much more threatening glow.
As I said in my previous post, 'The VA Screwed Up, Big Time.' I was angry and very distraught. My grief was eating me alive. As I have had many times in the past when I have worked with Doc Casagrande, I felt a moment of clarity. The grief is still there and still profound. The fact that I never got the chance to say goodbye, to have closure, will haunt me for quite some time. What that moment of clarity gave me was resolve - to continue to do the work he would have wanted me to in order to make the most of my live. And to make a difference for others. That moment of clarity showed me that, while I was robbed of my right to honor the man after he died, I could live my life - the live he had made possible - in his honor. To live my life as he lived his: with compassion, honesty, integrity, and unflinching resolve to do the right thing.
It is with this in mind that I share with you my vision. I want to take what he has taught me and make a difference for veterans with PTSD. As I move forward with creating my non-profit, I will be needing a physical location. In his honor: It will be named the 'Joseph Casagrande Center'
I ask for your support in making this a reality. Please help me and others that knew him honor his memory and his mission.
As I continue my life with PTSD, I will share my challenges and discoveries on this blog.